How do you people stay sane?
When you walk down a street in your hometown or city, or along a corridor on whatever station you visit, how do you stay sane when you see a fellow sentient being who is homeless and hungry, and in need of sanitation and fresh clothes, food and a warm bed, things that you get to enjoy? How do you stay sane when you hear about your neighbor having lost their job, and they’re mired in debt, unable to pay their bills, when you have plenty to spare? How do you stay sane whenever you see an injured stray dog who needs a trip to the nearest vet, with no owner in sight and no one else but you aware of his pain and his plight?
How, meioa, do you and your viewers stay sane when there are so many things you can do to make this universe a better place, day by day, step by step, kindness by kindness, instead of just sitting there complaining about its awful state? How can you and your viewers stay sane whenever you stay silent on matters of social injustice, oppression, and bigotry?
Johnson, J. (2014). Damnation. Penguin Publishing Group. Kindle Edition. (p. 318-319).
The caffinated autistic updated their post from December 2015 regarding Autism Speaks to make sure the data was updated. There isn’t any improvement in their ability to actually be there for the people they claim to represent. Links to the information are found on The caffinated autistic’s blog. Autism Speaks do not cease disappointing.
Update 4/4/17 – as of December 2015, Autism Speaks now has two autistic board members, Dr. Stephen Shore and Dr. Valarie Paradiz. In addition, their mission statement no longer includes the word “cure” . You can read more specifics here.
When a person thinks of the term “Autism Awareness” in the United States, it’s usually one organization that comes to mind – Autism Speaks. It is heralded by celebrities, politicians, nonprofit and for profit organizations alike. Many parents of autistic children enthusiastically applaud their “efforts”, even partaking in fundraising, despite not knowing much about what those efforts entail.
Ask an autistic person, however, and you might get quite a different picture of Autism Speaks.
The number one tenet of any activism among disability groups is “Nothing About Us Without Us”, yet Autism Speaks can’t even manage to meet this one basic qualification. They have never had an autistic member on their board. Their current board consists of parents, including one who founded SafeMinds, which has contributed to the anti vaccination movement, as well as another board member who used be a board member for Cure Autism Now. To view the full list, click here. To view a list of other leadership in their organization, click here.
The only autistic person high enough up in their leadership to be worth mentioning was John Elder Robison, author of Look Me in the Eye: My Life with Asperger’s Syndrome and part of their science advisory board. He resigned his position in November 2013, a decision he spoke about on his blog.
Autism Speaks spends just 3% of the money they raise back into helping families and autistic people. This comes in various forms, and not all of it is aimed at actually helping autistic people. Some of it is aimed at communication devices for autistic children and teenagers, and this is of course a very good thing. Much of it is also aimed at providing ABA therapy for autistic people, which is a behavioral intervention that much of the autism community opposes, particularly autistic people who are now adults who were subjected to it as children. Some accounts of this are here, here, here and here……………..
The rest of the article is on The caffinated autistic
Often when I use the words “equal rights”, there is an assumption that I am going to say something negative about men. Granted, there are a few men out there I would like to rant and rage against, #Drumph being the most obvious one at this time. However, equal rights means equal rights: that whoever/whatever I choose to fight for gets to have the same rights I would accord, if I could, to any person I like. I have chosen to fight for equal rights for people and animals. I do that one post, one individual, one conversation, one mail at a time. A militant attitude towards any kind of life doesn’t work for me. My Aspie mind becomes confused at the rhetoric that often lacks logic and has a one-sided view of the world.
I might have been that militant some years ago. Aspies are probably more susceptible to being manipulated into that kind of thinking. At least I am. But once I confronted my own deep-held beliefs about many topics (yes, including religion), I discovered I had been wrong. Admitting to being wrong sucks royally. But once I understood the psychological processes involved, it somehow became easier. Now I know that most of my understanding, opinions and knowledge is flawed. I also know that is true for the rest of the world. So, I seek to inform myself. For each new understanding, I see that there is so much more I do not understand. I guess that is kind of a dream condition for my type of Aspie. Digging into information and understanding the human mind is a need for me. Understanding the human mind is my “interest”, insofar as Aspies have special “interests”.
Poverty is an area of the human condition I would like to see reduced, even if that means I must give up something. Cause that is what equal rights is all about. The have’s (whether it be power or wealth) must share with the have not’s. A thanks to “Max Waller” who shared this youtube video on his Twitter. One part of fighting against poverty means fighting consumerism.